13 year old, Jyoti, a domestic servant,
was delighted at the birth of her first
born son. She and her husband, Dasharat,
a painter who later worked as a driver with
JK Tyres, were filled with hopes and dreams
for him. As the years passed, however, they
soon discovered their precious son had a
serious disability – a congenial muscular
skeleton deformity! His skeletal bones were
underdeveloped, which meant that although
the size of his head increased as per his
age, his body failed to develop in the same
proportion. This is Vikas who is now 13
years of age, intelligent, bright, cheerful
and full of life despite the fact that he
cannot walk and looks extremely small for
his age. His brothers, Raj, 11, and Mahesh,
7, are able, strong and do well at school.
The family lived in Thane, a district north
of mainland Mumbai. Normal life, as they
knew it, started to fall apart when Dasharat
met with an accident for which he had to
be hospitalized. That’s when the reality
of his HIV+ status came to be known and
Jyoti also tested positive. Tests conducted
on the boys, however, showed no signs of
the virus. With mouths to feed and bills
to pay, Jyoti was torn between looking to
the needs of her ailing husband, taking
care of her three children and struggling
at work to financially support her family.
She strained to earn enough to feed the
boys, but was distraught at not being there
for them. Desperation led the children to
begging at railway stations. Vikas’
disability tugged at the heart-strings of
passers-by and thus he managed to earn more
money.
Jyoti’s faith increased at the hospital
where her husband lay battling the virus,
through counseling from a social worker
from Jeevan Sahara Kendra, an HIV care project
at Thane. Ever since, she has been convinced
that God had been taking care of them all
along. 2 years later, when Dasharat passed
away, the family was referred to Purnata
Bhavan, (a residential care project of Oasis
India situated at Igatpuri). The boys could
go to school and Jyoti picked up some skills
through the vocational training programme
at the home.
In addition to be prepared to appear for
the National Open School Examinations, Vikas
is being taught English and computer skills
at Purnata Bhavan. The local school, where
his siblings study, has come forward to
provide for a wheelchair through a Government
initiated programme.
Vikas’ desire is to work with computers.
His mother would soon complete her training
and plans to settle in Mumbai along with
her 3 boys. Vikas, in the meantime wants
to further his expertise in computers by
undergoing formal training so as to be able
to take up data entry jobs in an office
set-up. Purnata Bhavan hopes to come in
contact with a person or an agency who could
buy Vikas a computer to present to him when
he finishes his stay at the home so that
he could earn and support himself and his
family. Our dream for Vikas is to enable
him to work in a ‘virtual world’
where his disability will not be a hindrance.
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